ALZHEIMER'S & DEMENTIA NEWS


Saturday, June 6, 2009

Caregiver Articles

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Narcissism and the Aging Adult - What Caregivers Can Do to Deal With This Difficult Task


Seniors and Driving


How Do You Know You Need a Caregiver For Your Parent?


Care For Elderly Parents - 3 Preliminary Preparations to Make Before They Move In


Care For Elderly Parents - 3 Ways to Prepare the Family
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Exclusive: One in five dementia scrips for anti-psychotics

Anti-psychotics, often necessary, but also often over-presribed and with prescriptions not being reviewed. This is a major bug-bear of mine. They are dangerous and debilitating drugs, that are prescribed at the drop of the hat, even when patients are only showing mild symptoms of agitation and aggression. If I had dementia and people were trying to restrict me from doing what I wanted to do, I would be agitated and angry too. That is a reasonable response, not a symptom of psychosis and such a response should first of all result in those treating the patient to at least attempt other non-drug therapies, diversion therapies, music and touch therapies first. Instead anti-psychotic drugs which have been shown to increase the risk of death in patients with dementia and are often not even approved as safe for these patients are all too often the first response.

IMEC, VIB And K.U.Leuven Launch Pioneering Brain Research

A joint research program has been set up where nanotechnology will be used to assist scientists in better understanding brain circuitry. It is hoped that this will provide vital knowledge for the pharmaceutical and medical industry and it is thought also to be crucial for the study of pathology such as Parkinson's disease, Alzheimer's disease and potentially also for psychiatric disorders...

The TTAP Method

A video posted on YouTube today which describes a therapeutic method that can be applied by caregivers of dementia patients...

GPS shoes for Alzheimer's patients

What a brilliant idea! I've often thought that the traditional bracelets and necklaces were not completely reliable, as often the person with dementia will remove them, but in my experience, most people with the condition still tend to wear their shoes everywhere, especially if they plan on going outdoors...

If you are looking for other anti-wandering devices here are a few ideas from Amazon.com as well:

* Anti-Wandering Devices

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New Books Released

Forget Memory: Creating Better Lives for People with Dementia

U.S. Amazon Link

U.K. Amazon Link

Canadian Amazon Link

Fishpond Australia Link

Amazon.com Review:
"A unique work. This wide-ranging critique of the current approach to the care of persons with dementia and memory impairment provides a much-needed prescription for change." - Peter V. Rabins, Johns Hopkins Medical Institutions, coauthor of The 36-Hour Day "One of the most creative scholars in the area of dementia practice reminds in an unforgettable way that memory is more than we think and also less." - Peter J. Whitehouse, Case Western Reserve University, coauthor of The Myth of Alzheimer's "With her big ideas and sharp criticism, Anne Basting is a vital part of the Alzheimer's community. I don't always agree with her, but I'm sure glad she's a part of this important conversation." - David Shenk, author of The Forgetting"


Dementia Care: Nurse to Nurse

U.S. Amazon Link

U.K. Amazon Link

Canadian Amazon Link

Fishpond Australia Link

Fishpond Description:
"The Nurse to Nurse" series brings the advice of the foremost experts in the field to nurses in clinical practice. From the co-director of Johns Hopkins University's neuropsychiatry clinic and a senior faculty member at the Copper Ridge Institute, comes the first pocket-sized reference for generalist nurses on care for clients with dementia. This handy, portable reference assists generalist nurses and other healthcare providers deal with one of the most emotionally-trying and fear-inducing disorders that they face in clinical practice.

Table of Contents
Nursing Care for Clients with Dementia
1. Key features of dementia
2. Definition of other complicating psychiatric and medical conditions
3. Recognition and management of delirium in the person with dementia.
4. Daily care
5. The 5 D approach to behavior problems.
6. Common behavior problems, risk factors and response.
7 Creating activities for the person with dementia
8. The use of companions and sitters
9 Communication with the health care team
10. Transferring of the patient and essential information for their care to another provider.

Parkinson's Disease Associated With Pesticide Exposure In French Farm Workers

Although my father does not have Parkinson's disease, his dementia type is non-typical, not fitting within any clear diagnosis, a little bit of Alzheimer's, a little bit of Frontotemporal Dementia, and a few movement disorders as well. As he regularly handled pesticides on my parents farm, we have often wondered if these poisons might have contributed to his condition. This article discusses research that suggests such poisons could at least contribute to Parkinson's Disease....

Review: Therapy for Alzheimer's Disease: How Effective Are Current Treatments?

I've given this story a flashing star icon as it is a comprehensive eight part article reviewing the various treatments for Alzheimer's diseases with comments on their effectiveness. You do however have to register with the Medscape website if you want to view all parts, but registration is free and this is well worth a read...

Massage and Alzheimer's Disease: What would Maslow say?

A great article that uses the well known hypothesis put forward by the American psychologist Maslow on human beings' hirearchy of needs to explain why massage and a caring touch can really help people with dementias...

This news isn't new, click here to read the results of a study into the effectiveness of lavender hand massages on cognitive function, emotion, and aggressive behavior of elderly with dementia.

Here is a link to where you can get lavender massage products:
Lavender Massage Products

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Regional News

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Runners being rallied for September's World Alzheimers Day run through Essex County


"Taking Steps Now" to prepare for Alzheimer Memory Walk - Carman


Derby pub could be demolished to make way for dementia care home


Dementia Awareness Week comes to Lockerbie


Caring With Confidence - All Day Event - South Essex


Evening explores Alzheimer’s - Central & West Virginia Chapters


Budget Cuts Threaten Services for California Alzheimer's Patients


Wesley Commons to host Alzheimer’s Presentation - SC


Police looking for missing Wheeling man - WV


State cites facility in death of patient - Mooresville, NC


Assisted living facility in Pana to focus on Alzheimer's disease - Illinois


Help Needed in Finding Missing Madisonville Man - KY


Caregivers get answers to legal aspects of health care - Union County, NC


Alzheimer's meeting scheduled - Vigo County, IN


Bring a teddy bear to an Alzheimer’s patient - Terre Haute, IN


Alzheimer’s Art and Fundraising - New Milford, CT


Wesley Commons to host speaker on Alzheimer’s - Greenwood, SC


Flapjack Breakfast is Alzheimer's benefit - Fairhaven, MA


Bonnie Holub: Caregivers need help in war on dementia - Tallahassee,FL,USA
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Old News Still in the Spotlight: Did you miss it?

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Dementia More Likely in Diabetics With Severe Hypoglycemia


Lack of Vitamin D Linked to Alzheimer's and Vascular Dementia


Ongoing Saga of Brooke Astor trial


Eating Curry Every Week 'could Prevent Dementia'


Important step in Alzheimer’s testing -Cerebrospinal fluids
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Friday, June 5, 2009

Looking for clues inside the brain

A video news story from the BBC, discussing brain research and the hopes that neurological diseases may be better understood with the help of a UK-wide Brain Bank Network...

Harnessing The Brain's Own Ability For Repair

An interesting article on how scientists are investigating how the brain repairs itself in the hopes of identifying why this process doesn't work sufficiently enough to stop neurological diseases, and perhaps one day discovering how to use this ability to fight such diseases more effectively...

Spike In Severe Weather And Looming Alzheimer's Disease Epidemic - A Formula For Disaster

This article provides ten useful tips for caregivers, so that they can be better prepared for the emergencies caused by natural disasters and the effect these may have on their ability to care for their loved ones...

Alzforum News Stories

I personally find the articles from Alzforum website, cutting edge, but quite difficult to read and understand at times due to all of the scientific jargon used. But, as an ex-language teacher I believe in an immersion approach and so work on the idea that if I keep reading this stuff I will beging to understand more and more of what they are saying, so here's the Alzforum news stories posted in the last few days...

Neither Fish Nor Fowl—Dementia With Lewy Bodies Often Missed


Research Brief: Friends, Toys, Exercise Build Synapses in Mice


Form or Function: How Does Pink1 Deficiency Mar Mitochondria?


Like DLB, Like AD—Do Oligomers Stir Up the Trouble?


Ordnung, Please—Can Biomarkers Tame a Bewildering Overlap?


Research Brief—Do Chaperones Need Protection From α-Synuclein?


Still Early Days for α-synuclein Fluid Marker


All Shook Up: TDP-43 an Instigator of Aggregation


Perpetrator and Savior—Presenilins Cut Both Ways


Meet Progranulin, The Biomarker—A Simpler Story?

Its good to see that Lewy Bodies dementia is getting some attention too...

Snoring Associated With Sleep Apnea May Impair Brain Function More Than Previously Thought

Here's a reason for me to lose weight so I stop snoring, and waking up suddenly gasping for air...

Let's Look, Spring 2009

From YouTube site: "Lets Look is a Spring 2009 group effort between the Pulitzer Foundation for the Arts, George Warren Brown School of Social Work, Metro Theater Company, the Alzheimers Association, and Cole Elementary. Adults with early stage dementia are paired with fourth, fifth, and sixth grade students from Cole in a ten-session workshop on Old Masters. The lessons include art history, architecture, storytelling, and nonverbal communication. Using arts as a tool, the programs goal is to bridge the gap between generations, to promote community and an understanding of diversity.

To read the progress of the project, visit its blog: letslook.pulitzerarts.org/"


Staging Old Masters rap for Let's Look:



JoAnn Sanditz (Alzheimer's Association Worker) Interview on the Let's Look Program:



Carol North (Metro Theatre) Interview on the Let's Look Progam:



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Mystery Solved: Tiny Protein-activator Responsible For Brain Cell Damage In Huntington Disease

Research answers the question of why a faulty protein in Huntington's Disease sufferers only kills cells in the part of the brain that controls movement...

Interview w/ Dr. Lawrence Goldstein, stem cell research expert and advocate

An excerpt from an interview done for a Work-in-Progress documentary examining the societal and personal impact of Alzheimer's...

Commonly Used Medications May Produce Cognitive Impairment In Older Adults

Before you jump to the conclusion that you have early stage Alzheimer's disease, read the article linked to above and check the medications you are on...

Alzheimers Awareness

Video posted to YouTube today, creating awareness, asking for donations to research, or letters to politicians, in the hopes that this will increase chances of finding a cure...nice soundtrack too...



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Alzheimer's drug study in Orlando area offers hope to patients

The article linked to above highlights a drug trial for the drug,bapineuzumab, one of the most well known and supposedly promising Alzheimer's drugs currently under development.

A week or two ago I also posted this story:

* Groundbreaking Drug Helping Alzheimer's Patients

..which originally was also accompanied by a video (which has since been taken off the net). At the time I couldn't work out what drug the story was referring to as it didn't mention its name, so I promised I would investigate and get back to my readers when I found out. An email from, Dr. Andrea Bozoki, assistant professor of neurology at MSU, a researcher involved in the study, finally reached me yesterday morning, and she confirms that this story was also about a bapineuzumab trial. In the email Dr. Bozoki wrote:

"A similar story but with much better, more complete information can be found in the Lansing State Journal from May 11th, titled A study in hope: experimental drug at MSU may help Alzheimer’s patients. In addition, there is a website to look at: www.icarastudy.com. The drug, bapineuzumab, is a monoclonal antibody directed against amyloid protein, the “bad” protein that is thought to destroy brain cells in Alzheimer’s disease. By giving people the antibody, it is hoped that it will allow their bodies’ immune system to come in and “eat up” (remove) the amyloid from between cells before it can cause more damage.

Our study coordinator is Diane Flatley, who can be reached at 884-2273. You should suggest that individuals look at the website, and if they feel they qualify and want to participate (age 50-88, mild-early moderate AD, no other neurologic diseases, no autoimmune disease and no cancer, living at home with a caregiver who sees them at least 5 days/week), to call us at that number."


Here, also is a recruitment video:



So if you are interested and think you might qualify, I hope the above information helps....

Regional News

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Dementia carers 'not accessing respite'


Video on Demand: Watch Four Corners Episode, 'End of the Line' about Australia's Nursing Homes


Help For People Living With Dementia - New Zealand


Editorial: NHS is still failing patients with dementia


Roadshow out and about for points of view - Scotland


Treatment lottery for people with dementia as over-prescribing of dangerous antipsychotics continues


Take part in our Memory Walk and fight dementia every step of the way


Tory councillor jokes about Alzheimer's sufferers losing their memory by repeating himself on purpose at meeting


Benefit slated for Alzheimer's program


Playbook for Alzheimer's Caregivers: A Practical Tips Guide - Washington State Chapter


Campbell woman takes Alzheimer's fight to heart


Proposed California budget cuts threaten programs for Alzheimer's patients


84-year-old man with dementia reported missing - San Francisco


Antiquing for Alzheimer's event is back - Greater Michigan Chapter


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Old News Still in the Spotlight - Did You Miss It?

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These first three stories are for you Mum...hope your herb gardening is successful...

Indian curry could prevent Alzheimer's disease, dementia


Weekly curry meals may help ward off dementia


Balti curries favour in dementia battle


Green Tea Compound May Block A Key Process In Alzheimer's Development

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Monday, June 1, 2009

Daughter cares for mother with dementia

Story of a caregiver, written by a caregiver which other caregivers will be able to relate to...

Deep brain stimulation being tested with brain injury, Alzheimer's, obesity and more

This article looks at research being conducted with regards to deep brain stimulation, something I had heard of with regards to Parkinson's patients, but not previously in relation to Alzheimer's disease...

Caring Right At Home Magazine - June Issue

The Caring Right At Home Magazine for June is out. This month it contains articles on:
* Promising Research for Earlier Diagnosis of Alzheimer's Disease
* Long Distance Caregiving: Home Care Can Help
...........................* Study Confirms Older Adults at High Risk for Drug Interactions
...........................* Help Older Adults Prevent Carbon Monoxide Poisoning
...........................* Encouraging Older Loved Ones to Manage Incontinence

Plaques, Tangles in Brain Don't Always Lead to Alzheimer's

This article is a few days old, but I think it is an important one to include here, as I have long believed that scientists are missing something vitally important when they continue to focus predominantly on plaques and tangles as the cause of Alzheimer's disease and other dementias...

Dementia care 'human rights' call

I wish I could embed this video, but BBC news doesn't like to share, so you will have to click on the link above to view it. This news story is a few days old and technically it could be relegated to the 'Regional News' section as it specifically looks at Scotland, however I know from experience, that the findings of the Scotland investigation into care homes are common in other countries as well and this is really a news article everyone should read to increase their awareness of what problems can arise in care/nursing homes. I have given the article a thumbs up, for bringing it to media attention....

Contracts Adding Legal Twist To Family Health Care

The article linked to above is U.S. centric but is worth a read by those who are in the early stages of diagnosis or who have a high familial/genetic risk of dementia as the reality is some pre-planning now could save bucketloads of money down the track.

Like the article says, many shirk away from considering such matters as they don't think it is appropriate to think about money when it comes to the care of a loved one, but if you can prepare yourself legally and financially ahead of time, you may just find that you can provide better care for your loved ones than if you don't or for those that get the disease, if they prepare ahead of time, they may be able to leave their loved ones better off financially whilst they are simultaneously faced with their care.

In most countries, if you are asset rich when you are diagnosed, all of these assets will be used to provide for your care before government will step in to assist. If these assets were in your name when diagnosed often it is too late to assign them to other family members. Perhaps that is appropriate...I guess it depends on your political leanings whether you agree or not...I personally have trouble feeling that it is fair that my mother loses everything whilst she cares for Dad for free other than minimal caregiver payments...these rules also fail to take into consideration the sentimental value of assets that can be lost as a result of them...

Mixed Neurodegenerative Disorders Are Emerging From The Shadows

As the daughter of a man who was diagnosed with young onset Alzheimer's disease, but later went on to develop aphasia and showed no obvious signs of memory problems per se, this article got my attention. It suggests that people suffering mixed neurodegenerative diseases (such as my Dad's condition which suggests a mix of Alzheimer's and Frontotemporal dementia, and also conditions like Llewy Bodies dementia, which has elements of Parkinson's disease) are increasingly getting the attention of researchers (hallelujah!) as it is thought that these conditions may bring to light pre-cursors other than the already well know tau tangles and beta amyloid plaques.

The article also talks about the Alzheimer's Research Forum (a web page I regularly scan for news articles)citing it as "the web's most dynamic scientific community dedicated to understanding Alzheimer disease and related disorders". Here is their article on the conceptual shift occurring with regards to mixed neurodegenerative disorders:

Spectrum of Neurodegeneration Comes to the Fore

Video Decision Support Tool For Advance Care Planning In Dementia: Randomised Controlled Trial, UK

This article discusses the results of a study published at bmj.com. To read the full details of the study click here.

Basically, the findings of the study were that if people facing a dementia diagnosis were given a verbal explanation regarding what advanced dementia means, accompanied by a video of people with advanced dementia, as opposed to just receiving the verbal explanation, they were better able to make decision regarding their future care.

I personally don't find this finding surprising. Goodness knows I have ranted and raved enough in the past about how important it is for people facing this disease to be forewarned with regards to what it really means to have it. Ten years ago when Dad was diagnosed all we got were vague suggestions that he would become forgetful, that he wouldn't know how to dress and may have trouble making decisions. Often I feel that people even now suggest I censor what I say about what dementia really results in, I am told it is too shocking, to frightening and I shouldn't be upsetting people with my knowledge. And yes it is shocking and it is frightening, but without this knowledge I see too many people wasting their good years, I see people not planning ahead sufficiently and I see society dismissing this disease as a 'nice way to go, where you just forget and don't realise what is happening'....

Student Creates Puzzles for Alzheimer Sufferers

I'm not sure why this particular news story made it into the Medical News today website as it seems to be in many ways a promotional news story, selling puzzles that have been created specifically for people suffering from Alzheimer's. However commercial reasons aside, I have included the story here for sake of those who are looking for activities for their loved ones...

Regional News

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'End of the Line' on ABC's Four Corners tonight, about Difficulties in Finding Quality Care


ABC Radio National: Australia's ageing aged care system


Australian Nursing Homes in Turmoil


Revised traffic law takes effect with new test for senior drivers - Japan


Extra beds for dementia care - Wairarapa, New Zealand


Funds for city Alzheimer's study - Aberdeen University, Scotland


Care for elderly bought using 'reverse auctions' - England


Ex-jockey begins 1,000-mile walk for Alzheimer's


Greensboro Hosts Memory Walk - NC:





Alzheimer's Disease Workshop Slated for June 12 at Underwood Senior Center - Huntington, WV


Support group to view HBO Alzheimer’s documentary - Sumter, SC


Gospel Singing Event for Alzheimer's - Terre Haute, IN:





Thanks to those who helped with Alzheimer's Gala - Delmarva


Caregiver Speech at U.S. Alzheimer's Gala Posted to YouTube:



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Old News Still in the Spotlight

Well, I'm back, but it seems like I haven't missed that much, at least in the scientific world, because the pages I've searched so far, are repeating stories I listed last week...

Dementia Drugs May Put Some Patients At Risk


Is Vitamin D Deficiency Linked To Alzheimer's Disease And Vascular Dementia?


Automated Analysis Of MR Images May Identify Early Alzheimer’s Disease


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Disclaimer:
The posts on this webpage reflect solely the opinion of the person posting the material. No contributors are qualified professionals in the dementia field, their opinions only reflect their own personal experiences of having had their lives 'touched by dementia' and there may be errors in their understanding of the matters reported on.
If you have a problem with any material, please contact us immediately.

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